Soraya's Story Part Two

In part two of our conversation with Soraya and her parents, Tasha and Safi, the family shares the extraordinary spiritual experiences that emerged as Soraya's health declined.

After years of searching for answers about her rare and progressive condition, Soraya began speaking about angels, soul contracts, loved ones on the other side, and what she believes is her life’s mission: to teach her family about love. She describes late-night visits from spirits asking for healing and a profound family moment that changed their relationships forever.

The conversation also explores the tension between science and spirituality, the surprising openness they’ve found within hospice care, and the emotional reality of raising a child who speaks candidly about mortality while offering wisdom far beyond her years.

Finally, the family shares the recent discovery of Soraya's ultra-rare diagnosis of TAOK1 gene deletion and their hope that future research could not only change Soraya's life, but the lives of countless families affected by rare diseases.

For more information and to donate towards research targeting Soraya's illness, click here: https://together.uw.edu/campaign/taok1